Lupus gets its name from the butterfly rash that typically appears over the face and people used to think looked rather wolf-like. I mentioned in an earlier post that over the summer the daughter of a colleague of Ian's was taken ill, eventually diagnosed with lupus and died very suddenly at the age of 26.
http://myweb.lsbu.ac.uk/~fintan/seana
This link gives all the details better than I ever could. Ian sent it to me as he thought it might mean something to me. It certainly did and I could identify with a lot of the things they went through, especially her refusal to let anyone go with her to hospital (I certainly did that!) and the strange and insidious presentation of the disease with its sudden serious climax. I feel incredibly thankful and also a little guilty that my outcome was more positive. I think when the coin was thrown up in the air mine landed one way and hers landed the other as when I asked my consultant if I would still be here if I had waited until my appointment time before getting seen he didn't answer.
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