In the end the end came quickly. Over the weekend she seemed to be asleep more than she was awake and when she was awake she pulled out her feeding tube. My sister watched her in a physiotherapy session and the only time she seemed to respond to anything was when she heard my sister's voice. Another feeding tube was inserted but she pulled it out almost immediately. Hard to know whether this was just a response to the sensation or a conscious decision on her part. If it was the latter I can't say I blame her. My sister was called to say that her breathing had deteriorated but by the time she arrived she was already dead. The most likely immediate cause was that she had been sick and inhaled her own vomit. We were left with mixed emotions as a life as the one that loomed ahead of her had she survived would have been no life.
Now it is over the idea that she was unwell for only 3 weeks before she died seems relatively short compared to what some people suffer but in the middle of it we suffered every minute of it with her and it felt like an eternity.